To promote and fund medical research on the topic of Brain Tumours in Ireland and abroad.
The Ronnie Fehily Foundation
Brain Tumour Ireland was founded in 2012 by a small group of people caring for a family member who was sadly lost to a Brain Tumour.
As a national organisation our aim is to continue to fight the battle against the disease in her honour. Through Brain Tumour Ireland (The Ronnie Fehily Foundation) we hope to create a place where people can come for information, guidance and comfort. A place to learn what to expect and a community to provide support.
As a fully registered member of the Charities Regulator, Brain Tumour Ireland is compliant with all rules and regulations concerning fundraising, both online and traditional.
Read and download our three-year strategy (2022-2024)
Read and download our Parent Survey results (2022)
Brain Tumour Ireland
Registered Charity Number: 20102128
CHY Number: 20506
Governance
Parent Survey Results
2022
Three Year Strategy
(2022-2024)
Annual Report 2021
Annual Report 2020
Donor Charter
Code of Conduct for Trustees
Managing Conflicts of Interest
Data Protection Policy
Vision
Brain Tumour Ireland envisions a society where all people affected by brain tumours are treated with dignity and respect, and have access to effective treatment, quality services and up-to-date information.
Mission
Brain Tumour Ireland’s mission is to provide information and support to people with brain tumours, their carers/family/friends, as well as to medical and other relevant professionals. We aim to raise awareness of brain tumours, and advocate for Ireland to be a world leader in brain tumour research, diagnosis, treatment and care.
Our goals
Raise Awareness & Education
To raise awareness of and promote education about Brain Tumours.
Inform & Support
To provide information and support to Brain Tumour patients and their families/friends.
Promote & Fund Research
Our team
Fiona Keegan
Fiona Keegan was appointed as CEO of Brain Tumour Ireland in November 2022. Fiona had been the National Coordinator of Brain Tumour Ireland since March 2017. She has a background in psychotherapy and has worked for over 15 years in the voluntary sector, supporting vulnerable people and their families.
Fiona’s previous role involved working with a charity where she developed the support services available for people living with a chronic condition. Fiona’s primary role within Brain Tumour Ireland is to build on the work which has already started in providing first-class support services for people with a brain tumour and their families and carers.
Our board members
Adam Kelly
Adam Kelly is the Chair of Brain Tumour Ireland. Adam is Country Manager of Avande Ireland, a Microsoft and Accenture Company.
A true people person, Adam is passionate about his team, technology and bringing value to his clients in the Microsoft space. He has a genuine interest in people and their journey’s – his commitment to continuing the fantastic work of BTI comes from personal experience and he looks forward to taking on this new role as Chair.
Ciara Murphy
Ciara Murphy is the Chief Executive of The Bar of Ireland. She has 25 years’ experience working in professional and regulatory bodies in the legal, property/ construction and health sector in Ireland.
She has a keen interest in helping Brain Tumour Ireland in its strategic planning for the benefit of delivering services to those with brain tumours and their families.
Philip Gunn
Philip is a UK chartered accountant (member of ICAEW) with more than 30 years experience in finance, operations and management in Ireland, UK, Europe and Asia.
Philip is passionate about the care, support and research into brain tumours which stems from his own personal experiences. As Treasurer, he will bring his financial and operational knowledge to BTI and help shape its future direction.
Prof. Michael Farrell
Michael Farrell is a retired neuropathologist. He has worked in Beaumont Hospital since its opening in 1987 and previously trained and worked at the University of Western Ontario Canada. He has been involved in the diagnosis and management of patients with brain and spinal tumours for over 40 years.
Michael is heavily involved in teaching at both undergraduate and postgraduate level. He is delighted to work with Brain Tumour Ireland to help achieve improved quality of life for all patients with brain and spinal tumours.
Holly Kelly
Holly is a parent representative on the Board of Brain Tumour Ireland. She feels very passionate about advocating for paediatric brain tumours, both for the child and family, particularly in the area of aftercare.
Since her daughter was diagnosed with a brain tumour in 2016, Holly has been active in bringing awareness to the issue of paediatric brain tumours, and along with her family has taken part in a number of charity events helping to raise money for both children’s hospitals.
Caroline Kane Montague
Caroline is our patient representative on the Board. Caroline was diagnosed with a brain tumour at the age of 10.
Caroline has worked for over 20 years in the childcare industry including Montessori teaching and 12 years as a Special Needs Assistant in a school for children with an intellectual disability.
Caroline has been involved with Brain Tumour Ireland from the beginning with her main interest supporting patients and their families. Caroline also likes to get involved in organising events for Brain Tumour Ireland, both informative and social with a main goal being to get support groups set up nationwide.