Brain Tumour Ireland
The Ronnie Fehily Foundation
Brain Tumour Ireland was founded in 2012 by a small group of people caring for a family member who was sadly lost to a Brain Tumour.
As a national organisation our aim is to continue to fight the battle against the disease in her honour. Through Brain Tumour Ireland (The Ronnie Fehily Foundation) we hope to create a place where people can come for information, guidance and comfort. A place to learn what to expect and a community to provide support.
As a fully registered member of the Charities Regulator, Brain Tumour Ireland is compliant with all rules and regulations concerning fundraising, both online and traditional.
Brain Tumour Ireland
Registered Charity Number: 20102128
Revenue Number: 20506
Vision
Brain Tumour Ireland envisions a society where all people affected by brain tumours are treated with dignity and respect, and have access to effective treatment, quality services and up-to-date information.
Mission
Brain Tumour Ireland’s mission is to provide information and support to people with brain tumours, their carers/family/friends, as well as to medical and other relevant professionals. We aim to raise awareness of brain tumours, and advocate for Ireland to be a world leader in brain tumour research, diagnosis, treatment and care.
Values
Inclusive and non-discriminatory
We are inclusive. This means that we aim to communicate with the general public and the brain tumour community in a way that will be understood by people with language barriers, literacy difficulties or impaired cognitive functions.
We are non-discriminatory, meaning that in the provision of services, support and information, we do not discriminate based on gender, religion, sexuality, ethnicity, ability, family status, marital status or membership of the travelling community.
Open and transparent
Brain Tumour Ireland is open in its governance and financial activities; we publish our annual accounts showing how our stakeholders’ contributions are spent for the benefit of the brain tumour community. Our policies and procedures are formulated in such a way as to ensure good governance and at all times we seek to be compliant with the Governance Code for non-profit organisations.
Ambitious and forward thinking
Brain Tumour Ireland is committed to supporting progress in relation to brain tumour research and treatment. This means that we actively seek opportunities to support brain tumour research and promote it through fundraising and raising awareness. We would like Ireland to be a world leader in brain tumour research and treatment.
Client focused
We prioritise people affected by brain tumours. Their needs inform all of our work, both internally and with clients and partners. We aim to provide high quality support and information to all those affected by brain tumours.
Peer-led
We believe that people affected by brain tumours are experts by virtue of their experience and are well-placed to lead Brain Tumour Ireland in achieving our objectives. This means that people affected by brain tumours, including patients and their families/ carers, are represented at Board level in the organisation, and regularly consulted in decision making and planning for the organisation.
Partnership-focused
We value partnership with other organisations in Ireland and abroad, whose aims are similar to those of Brain Tumour Ireland. Wherever possible, we seek out opportunities to share knowledge, increase efficiency and improve our services by working with other organisations.
Our Team
Fiona Keegan
Fiona Keegan was appointed National Coordinator of Brain Tumour Ireland in March 2017.
She has a background in psychotherapy and has worked for over 15 years in the voluntary sector, supporting vulnerable people and their families.
Fiona’s previous role involved working with a charity in which she developed the support services available for people living with a chronic condition in Ireland.
Fiona’s primary role within Brain Tumour Ireland is to build on the work which has already started in providing first class support services for people with a brain tumour and their families and carers.
Natasha Smith
Chairperson
Natasha Smith is the Chair of Brain Tumour Ireland and is one of a number of family members who set up Brain Tumour Ireland as a result of the loss of her mother Ronnie in 2012. Since then Natasha has worked tirelessly to raise funds and awareness of brain tumours. She attends many events to promote the Charity and liaises with our Patrons. Natasha serves on the Fundraising and Support Committees of Brain Tumour Ireland. Natasha works as an SEN Coordinator in a second level school in Dublin and lives in Kilkenny with her husband Liam and four daughters.
Padraig Leahy
Treasurer
Padraig Leahy is a Chartered Accountant with more than 35 years’ experience within the accountancy profession.
Padraig has worked at Financial Controller level in a variety of national and international organisations since 1990.
Padraig’s understanding and passion for the care and support of people with acute brain injuries stems from his personal experience.
Padraig is responsible for Financial management, control and reporting of Brain Tumour Ireland and for development and implementation of financial policies and procedures.
Holly Kelly
Holly is a parent representative on the Board of Brain Tumour Ireland.
She feels very passionate about advocating for paediatric brain tumours, both for the child and family, particularly in the area of aftercare.
Since her daughter was diagnosed with a brain tumour in 2016, Holly has been active in bringing awareness to the issue of paediatric brain tumours, and along with her family has taken part in a number of charity events helping to raise money for both children’s hospitals.
Holly has 2 children and she lives in Dublin.
Eloise Cowie
Eloise is a nurse manager in Beaumont Hospital.
She has over 20 years experience in Neurosurgical nursing, providing support and education to patients with Brain tumours and their families.
Eloise has a strong belief in patient centred care and advocates for improving quality and access for the patient and family.
Eloise is originally from New Zealand and now lives in County Meath with her husband and three children.
Cliona Doyle
Cliona is a political communications professional working in the Houses of the Oireachtas.
She has a proven commitment to public service through voluntary work and involvement in political campaigns.
She has a postgraduate degree in European Studies and undergraduate degree in Social Science.
Cliona serves Brain Tumour Ireland in the areas of media relations, website and social media management.
Leeane Grace
Leeane is a solicitor from Dublin.
She is passionate about patient dignity in healthcare. She has personal experience of advocating for her mum who experienced a catastrophic injury.
Leeane advocates for care that focuses on the individual patient which she believes allows a person autonomy and gives both the person and their family the best support.
Kerry Morgan
Kerry Morgan is a barrister from Dublin with over 18 years’ experience advising commercial and individual clients in a varied civil legal practice.
She is on the Finance and Governance and the Research Funding working groups of Brain Tumour Ireland and looks forward to helping the charity make an impact in not just the everyday lives of those living with brain tumours and their families but also in channeling research so that progress can be made in the future diagnosis and treatment options available.
The Ronnie Fehily Foundation CHY20506. Founded in 2012 by a small group of people caring for a family member who was sadly lost to a Brain Tumour.
