We know that this is a very difficult time for people with brain tumours as well as their families and carers.
Below is information which you may find helpful and should answer some of the questions you may have about your ongoing treatment.
Patients should contact their medical team for any specific questions about their tumour or treatment.
Sources: Health Service Executive Ireland, British Neuro-Oncology Society.
Check in with the latest public health advice
As the COVID-19 outbreak is a rapidly changing environment, we advise all patients to keep up to date with the Government’s advice and guidelines at https://www2.hse.ie/coronavirus/
Information on disruptions to hospital services is updated here on a regular basis: https://www2.hse.ie/services/hospital-service-disruptions/hospital-service-disruptions-covid19.html
Ireland’s Roadmap to Reopening
We are now in Phase 3 of Ireland’s Roadmap to Reopening, which commenced on Monday 29th June 2020.
Details of the full Roadmap to Reopening can be found here.
Phase 4 is due to commence on Monday 20th July 2020.
Do you need information or support? Maybe even just a chat?
We are here.We know that this is a very challenging time for people living with brain tumours, particularly anyone receiving a new diagnosis. We want to continue to support you, your families and/or carers.
What is the most difficult aspect of COVID-19 for you at the moment? Is there any way that burden can be eased for you?
Contact us at firstname.lastname@example.org or by calling 085 7219000. The phone is manned Monday – Thursday but if you do not get us immediately you can leave a message and we will get back to you.
Together we will get through this challenging time.
Brain tumour support groups
Taking into account the public health advice to avoid gatherings, all face to face brain tumour support groups, including our own, and those of the Irish Brain Tumour Support Group, are postponed until further notice.
However we at Brain Tumour Ireland can make our Zoom account available to all brain tumour support groups so they can continue meeting in accordance with the physical distancing rules.
How can we provide the best end of life care for people during the COVID-19 pandemic?
Take a look at this series of short videos by our board member Bryan Nolan on the theme of “Caring for Carers”. https://www.youtube.com/watch?v=cHVkOXHgzBk
We thank all of the front line staff providing such considerate and compassionate end of life care for people at what is a very difficult time.
We also support the Irish Hospice Foundation‘s Think Ahead campaign. You can read lots of useful information about important conversations and planning here: https://hospicefoundation.ie/…/public-awareness/think-ahead/