Brain Tumour Ireland Front Page Posts

Brain Tumour Ireland is conducting a Survey for Parents of children who have been diagnosed with a brain tumour.


Access the Survey here.


Why Are We Doing This Survey?

Brain Tumour Ireland has long been aware of the gaps in services for children diagnosed with a brain tumour.  In particular these services can be hard to access once the child has left the hospital setting. We have heard many stories from parents feeling they have to fend for themselves to access appropriate rehabilitation services, educational support, financial support etc. that would benefit their child’s recovery and help reintegrate them back into school and other peer group settings.

We would like to capture as much information as possible from you as parents/guardians about the lived experience when accessing vital services for your child. We want to have a better understanding of where the gaps in services and information are so that we can advocate on your behalf for better and more timely services.


How We Developed The Survey.

The survey questions we ask will give us the type of information we need in order to get a better understanding of the services available to children following a brain tumour diagnosis. We have really benefited from the input of Prof. Irwin Gill, Consultant Paediatrician with special interest in Neurodisability, Temple Street Hospital, Dr. Sarah Curry, Consultant Paediatric Oncologist, Crumlin Hospital, Prof. Frances Horgan, Assoc. Professor of Physiotherapy, RCSI, Dr. Ailish Malone, Lecturer in Physiotherapy, RCSI and Dr. Paul Carroll, National Rehabilitation Hospital (NRH).

We engaged the services of Amárach Research the leading market research company to
design, implement and host the survey.


The Logistics.

This survey is not short. The information that we are collecting is vital to understand the needs of parents and children. We have worked with Amárach Research to make it as easy and as user friendly as possible.

The survey will take approx. 20-25 minutes to complete and you will be able to pause the survey and come back to it later, as long as you do this on the same device (laptop, phone etc.).

We would welcome both parents/guardians to take the survey as we know the experience can be different for both. Once the data from the survey has been collected, you will have the option to receive a summary of results should you wish. We would emphasis of course that Brain Tumour Ireland has no access to individual responses and we will only get a report of aggregate findings from Amárach.

Finally, we would ask that you share this survey with other parents or families that you know would like to contribute to this important project. The closing date for this survey is Friday 26th August.

You can access the survey by clicking this link.

Many thanks for taking the time to share your experience as a parent/guardian of a child with a brain tumour diagnosis. All of your support enables us to extend our services.

Join us for Family Fun with Barretstown!
We at Brain Tumour Ireland are thrilled to be hosting this fun-filled event with the great people at Barretstown again in May!
This is a free event for children affected by a brain tumour and their siblings. It takes place on Sunday 22nd May 2022 from 12pm – 5pm.
To register places at this event please email Please include the number of children attending the event along with their names and ages.


We are delighted to be back with in person events and would be delighted to include you in the Brain Tumour Ireland team for this year’s event, which takes place on SUNDAY 5th June at 2pm.

We will be in D2 Bar , Harcourt St on the day to mind your bags and provide some well deserved post-race refreshments and nibbles!

By joining the Brain Tumour Ireland team you will be helping to fund brain tumour research as well as our work in supporting brain tumour patients and their families.

It’s easy to sign up! Follow the simple three step process here:

We are giving away a free pair of ASICS runners to one very lucky Brain Tumour Ireland Women’s Mini Marathon participant… to WIN, simply just enter the marathon as a participant for Brain Tumour Ireland, share (proof) that you’ve entered across your social media channels with us tagged, and you’ll be in with a chance to WIN!

All BTI WMM entries registered to date are eligible to win. You will collect your free pair of runners on the day at our base in DTwo on Harcourt street! (The winner will be contacted after the competition closes on the 28th May 2022 where shoe size etc information will be requested.)

Also please note we have a list populated from registration of those running on behalf of BTI and as such will have your entry and contact details noted to contact you!

So come on everybody! Let’s get those runners on, and help make this an even bigger event than last year. We do hope you will join us and we look forward to seeing you on the 5th of June!


Christmas in June, a fundraising event by Barbara Dowling.

Event Date: 26th June 2022

My name is Barbara Dowling and I am putting together an exceptionally large choir for a fundraising and awareness concert for Brain Tumour Ireland. 

This concert will be held in the WIT arena in Waterford on June 26th 2022. The choir will be accompanied by an orchestra of 200+ who will be traveling from all over Ireland, Europe, Great Britain and the USA in order to participate, all at their own expense. 

This concert will be quite unusual as it will be a full programme of Christmas music (yes in June!), but the majority of the arrangements are pieces that have never been performed here before. The Orchestral and Choral aspects of the production will be spearheaded by Liam Daly, Dr. Kevin O’ Carroll, Niall Crowley and Éimear Noone

All of the monies raised through ticket sales are going directly to Brain Tumour Ireland (CHY20506). This will not be an event where 3/4’s of the funds raised are going to cover expenses.. all funds are for the charity.

I really hope that you will be willing to give your time to enjoy this… just think of all the reacquainting that will happen, the craic and probably the bedlam that will be involved!!

A brief explanation behind the reasoning of this project:

Within 48 hours in July of 2019, I was diagnosed with an inoperable brain tumour, multiple sclerosis and thyroid cancer. It’s taken a while to get things sorted but it’s getting there! The tumour will stay where it is, a slow growing one that will eventually turn cancerous. The MS will be treated shortly now that the radioactive iodine treatment is finished and I’m delighted to say that I am now cancer-free! I’m lucky as the form of MS that I have is called relapsing-remitting MS and can be stopped from progressing once the treatment starts. It won’t fix the current issues but may ease them (which basically for me means I may get my full sight back, get full power back to the arms, fingers and legs, say goodbye to the tremors in the hands and best of all, some bit of balance so I don’t walk like the one that’s been on the bottle since early morning!

Throughout all this, I came in contact with an organisation called Brain Tumour Ireland (BTI) who have been unreal. There to steer you in the direction of help and advice, random check-ins just to make sure you’re doing ok and mostly not in your face but yet ever-present with support.

Why do I want to do this concert in June?

Simply because not everyone can wait for Christmas….

Tickets for this event go on sale from the 26th February via this link , tickets cost €25, included in ticket price is a glass of Mulled wine or a Hot Chocolate.

Doors open at 6.30 for a 7.30pm start. There will be plenty to see, hear and explore before entering the auditorium.

Thank you for your interest, support and we look forward to welcoming you to our Christmas in June event!


Our annual Remembrance Service will take place online this year on Sunday, 28th of November at 4.30pm.


It is a non-denominational service for people who have lost a loved one due to a brain tumour.


To join us for this online service please contact In order to receive your special remembrance gift pack in the post on time, please register by 22nd of November latest.

Thank you to everyone who took part in Wear A Hat Day 2021!


It was great to see so many hat selfies being shared online on Wear A Hat Day. Here is a sample of the fantastic hats. For more, check out our social media.


Thank you to everyone who donated to our working in supporting brain tumour patients and their families. You can still donate €4 by texting BTI to 50300, or for more ways to donate, please see here.




Congratulations to our #WearAHatDay winners! Winner of the beautiful Lina Stein hat for overall best selfie and for being a great advocate for the brain tumour community is @worth_fighting4. Additional prizes for these other great hat pics go to @dmuid, @naionra_na_nog, @alannahandpolly and @therailwaybarbundoran. Thanks to everyone for taking part and helping to raise awareness and funds on #WearAHatDay. Huge thanks also to Lina Stein for judging the competition as well as all her wonderful support this week, including the generous donation of this beautiful hat, and the fantastic fascinator workshop for some of our front line heroes!

We are also delighted to announce the winners of our #HatsOffHeroes campaign.
The three heroes (names drawn from a hat) win a €250 voucher for Ireland’s Blue Book. 
The three people who have nominated their heroes also each win a €100 voucher from Press Up Entertainment Group.
Thanks to everyone who nominated their heroes this #BrainTumourAwarenessWeek. We were delighted to be able to highlight the valuable contributions of the every day heroes who support the brain tumour community in Ireland.

We would like to say a massive thank you to milliner Lina Stein for being our official milliner for the 2021 Brain Tumour Awareness Week. We are so grateful to Lina for judging the hat competition and the generous donation of a beautiful hat as a prize. Lina was also extremely generous in giving a fantastic fascinator making workshop for some of our front line heroes! Learn more about Lina’s work here.

Brain Tumour Awareness Week 2021 takes place from Saturday 30th October – Saturday 6th November.


Read more

The annual Brain Tumour Ireland run / walk event to fundraise for our work in supporting brain tumour patients and their families, takes place VIRTUALLY again in 2021!
To take part, just sign up here and then you can walk, jog or run 5km or 10km anytime of your choosing between Sunday November 7th & Sunday November 14th.

Entries cost €20 and we have a beautiful finisher’s medal for you as a souvenir of the event.

Our event forms part of  “Walk Around the World for Brain Tumours”, a project co-ordinated by the International Brain Tumour Alliance (IBTA).  We will donate the mileage covered to the IBTA’s “World Walk” target of circling the earth to raise awareness of brain tumours globally.

To help contribute to the mileage and donate to the work of Brain Tumour Ireland, we hope you will join us for this year’s virtual event!


Family Support

A new Brain Tumour Ireland Family Support Group has been established for the family members and carers of people with brain tumours.
The next meeting takes place online on Wednesday 14th September 2022 at 7.30pm.
The group is free to attend. To register your place, please contact


Dublin City University’s School of Nursing, Psychotherapy and Community Health is collaborating with Children in Hospital Ireland on a study to identify parents’ experiences of restricted visiting during their child’s hospital admission during the Covid-19 Pandemic.

They are aiming to understand parental experiences of restricted visiting during their child’s (0-18 years) hospitalisation at the time of the COVID-19 pandemic in Ireland, and to understand the impact these restrictions had on the parents themselves, on their child who was hospitalised and on their extended family (including siblings).

We encourage any families who might have been impacted during the Covid-19 Pandemic to take this short survey.  It will take 10-15 minutes to complete and you can access it here.