Brain Tumour Ireland News

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Brain Tumour Ireland’s New Paediatric Website

Brain Tumour Ireland has launched a new website for families affected by a paediatric brain tumour diagnosis. You can access the new Brain Tumour Ireland Paediatric site here.

 

Brain Tumour Awareness Week 2020 is shining a light on paediatric brain tumours, raising awareness of the impact that such a condition has on children and their families.

 

Every year in Ireland, an average of 45 children and teenagers, are diagnosed with a tumour of the brain or spinal cord. Brain tumours are the most common tumours seen in children, and account for 2 in 10 new cases of childhood cancer every year.

 

A diagnosis like this is of course, a very stressful time for the entire family. We hope to create a community where you can find information and support.

 

 

 

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Brain Tumour Awareness Week 2020

Brain Tumour Awareness Week 2020 is taking place from Monday, 19th to Friday, 23rd October.

This year, we’re shining a light on the impact of paediatric brain tumours, raising awareness of the impact that such a condition has on children and their families.

We have a series of online events running throughout the week designed to support the families of children diagnosed with brain tumours.

 

The full programme of events is as follows:


Monday 19th October – 11.30am

‘Impact on Siblings When a Child has been Diagnosed with a Brain tumour’
Peter Hanlon, PhD, Journey Through Loss

Tuesday 20th October – 11.30am

‘Talking to Children about Bereavement and Loss’
Maura Keating, Irish Childhood Bereavement Network

Wednesday 21st October – 11am

‘The Importance of Taking Care of Yourself as a Parent’
Bryan Nolan, Training & Facilitation Consultant Specialising in Grief and Loss

Thursday 22nd October – 3.00pm

‘Barretstown Live: Activity Extravaganza!’
An Hour of Games and Activities with the Barretstown Gang

Friday 23rd October: #WearAHatDay

#WearAHatDay

Win a Michelle Treacy Hat for best selfie competition

 

Please contact info@braintumourireland.com to sign up for your chosen events.

 

Wear A Hat Day

As part of the awareness week, we’re also holding the annual #WearAHatDay, taking place on Friday, 23rd October, – we’re asking you to get involved!

All you have to do is put on your favourite hat on Friday, 23rd October, take a selfie and post on Facebook, Twitter or Instagram and use #WearAHatDay, then text BTI to 50300 to donate €4 to Brain Tumour Ireland.

 

From fedoras to fascinators- anything goes!

There’s also a prize for the ’best selfie’ – a generously donated bespoke hat from milliner Michelle Treacy! Check out her talents at https://m.facebook.com/michelletreacymillinery/

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Brain Tumour Ireland Annual Run/ Walk- a virtual event in 2020

 

 

Our annual Brain Tumour Ireland run is going virtual for 2020!

To take part in this event, you can walk, jog or run either 5km or 10k, anytime between Sunday November 1st & Sunday November 8th.

Entries cost €20 and this year we have a beautiful finisher’s medal for you as a souvenir of the event. You can enter the event here.

Our event forms part of  “Walk Around the World for Brain Tumours”, a project co-ordinated by the International Brain Tumour Alliance (IBTA). https://theibta.org/awareness-raising/#one 

We will donate the mileage covered to the IBTA’s “World Walk” target of circling the earth to raise awareness of brain tumours globally.

To help contribute to the mileage and donate to the work of Brain Tumour Ireland, we hope you will join us for this year’s virtual event!

 

 

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Music Therapy Series

Brain Tumour Ireland is holding a series of music therapy classes online for brain tumour patients, their family members and carers.

Thank you to music therapist Jess O’Donoghue for the gift of her time and talents to this series, which is free of charge to participants.

The sessions incorporate guided music relaxation and allow time to switch off and focus on your wellbeing.

Please contact info@braintumourireland.com for details on upcoming sessions.

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Win a Philip Treacy Hat

You could attend the Galway Races Virtual Ladies Day (30th July) in style this year by winning this beautiful hat kindly donated to Brain Tumour Ireland by Galway native and world renowned milliner Philip Treacy.
We are running an online raffle and you can enter here. 
Each ticket costs €10 and you will be allocated one ticket number per entry.
The winning number will be chosen by an online random selector on Friday 24th July. The winner will be notified by email and we will contact you to make delivery arrangements. To be notified by phone, please include your phone number when donating.
Good Luck!
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Caring for Carers- Coffee Morning and Information Session (via Zoom)

 

Caring for carers is so important, especially at this time.

We hope you can join our zoom coffee morning and information session on Saturday 20th June @ 11am, which is open to family, friends and carers of brain tumour patients.

Register for this free event by emailing sandra@braintumourireland.com and we will send out your Coffee Morning Gift Box ahead of the event.

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International Survey – “COVID-19: the brain tumour patient and caregiver experience”

The International Brain Tumour Alliance and the US Society for Neuro-Oncology (SNO) are conducting an international survey “COVID-19: the brain tumour patient and caregiver experience”.

The survey closes on 30 April 2020.

Click here to take part.

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Coronavirus (COVID-2019)

Do you need information or support? Maybe even just a chat?

We are here.

We know that this is a very challenging time for people living with brain tumours, particularly anyone receiving a new diagnosis. We want to continue to support you, your families and/or carers.

What is the most difficult aspect of COVID-19 for you at the moment? Is there any way that burden can be eased for you?

Contact us at info@braintumourireland.com or by calling 085 7219000. The phone is manned Monday – Thursday but if you do not get us immediately you can leave a message and we will get back to you.

Together we will get through this challenging time.

 

See here for our dedicated COVID-19 advice page.

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Important notice for the brain tumour community in Ireland

An important public notice was placed in newspapers by Beaumont Hospital this weekend.

If you or an adult family member were treated for a brain tumour at Beaumont Hospital between 29 November 1987 and 7 August 2018 you should consult this website here.

The website describes a study being conducted by Beaumont Hospital and it explains how you or your family member can be excluded from the research if you so choose.

All queries in relation to the study can be directed to btis@beaumont.ie or by calling 017977726.

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