Brain Tumour Ireland News
Dublin City University’s School of Nursing, Psychotherapy and Community Health is collaborating with Children in Hospital Ireland on a study to identify parents’ experiences of restricted visiting during their child’s hospital admission during the Covid-19 Pandemic.
They are aiming to understand parental experiences of restricted visiting during their child’s (0-18 years) hospitalisation at the time of the COVID-19 pandemic in Ireland, and to understand the impact these restrictions had on the parents themselves, on their child who was hospitalised and on their extended family (including siblings).
We encourage any families who might have been impacted during the Covid-19 Pandemic to take this short survey. It will take 10-15 minutes to complete and you can access it here.
National Carers’ Week event via Zoom
Join us for an online coffee morning and information session on Saturday 12th June @ 11am, aimed at the family, friends and carers of brain tumour patients.
As part of National Carers’ Week 2021 we are holding our annual event to show appreciation for all the work undertaken by the many wonderful carers in the brain tumour community.
The event will feature talks from Niamh Connolly, Cognitive Behavioural Therapist; and Marian Mahon, who has a wealth of experience in the area of carers’ rights, having spent many years working for Family Carers Ireland.
Register for this free event by emailing info@braintumourireland.com and we will send out your Coffee Morning Gift Box (please register by June 3rd to receive it ahead of the event).
Brain Tumour Ireland is hosting an Easter Break fun session with @barretstown_camp on Thursday 8th April from 11.30am -12.30pm.
This is a fun event for children who have been affected by brain tumours. Siblings are welcome too.
Activities will include “costume creations” and “sound effects”.
The event is free and all you need to do is register your place by emailing info@braintumourireland.com and we will send you the details.
We hope you will join us for a fun hour of games and activities!
This series is for brain tumour patients, their family members and carers and incorporates guided music relaxation, allowing you time to switch off and focus on your wellbeing.
Email info@braintumourireland.com to find out more and be part of our next session.
The annual Family Day that we usually host in Barretstown Camp will be taking place online this year on Sunday 6th December 11am-12:30pm.
There will be games, arts and crafts, Christmas decorations, and even a visit from a special Elf!
This free event is open to families affected by brain tumours.
We hope you will join us!
Email info@braintumourireland.com to register your free place and we will send you all the details you need.
Our annual Remembrance Service will take place online this year on Sunday, 22nd of November at 4.30pm.
It is a non-denominational service for people who have lost a loved one due to a brain tumour.
To join us for this online service please contact info@braintumourireland.com.
Brain Tumour Ireland has launched a new website for families affected by a paediatric brain tumour diagnosis. You can access the new Brain Tumour Ireland Paediatric site here.
Brain Tumour Awareness Week 2020 is shining a light on paediatric brain tumours, raising awareness of the impact that such a condition has on children and their families.
Every year in Ireland, an average of 45 children and teenagers, are diagnosed with a tumour of the brain or spinal cord. Brain tumours are the most common tumours seen in children, and account for 2 in 10 new cases of childhood cancer every year.
A diagnosis like this is of course, a very stressful time for the entire family. We hope to create a community where you can find information and support.
This year, we’re shining a light on the impact of paediatric brain tumours, raising awareness of the impact that such a condition has on children and their families.
We have a series of online events running throughout the week designed to support the families of children diagnosed with brain tumours.
The full programme of events is as follows:
Monday 19th October – 11.30am
‘Impact on Siblings When a Child has been Diagnosed with a Brain tumour’
Peter Hanlon, PhD, Journey Through Loss
Tuesday 20th October – 11.30am
‘Talking to Children about Bereavement and Loss’
Maura Keating, Irish Childhood Bereavement Network
Wednesday 21st October – 11am
‘The Importance of Taking Care of Yourself as a Parent’
Bryan Nolan, Training & Facilitation Consultant Specialising in Grief and Loss
Thursday 22nd October – 3.00pm
‘Barretstown Live: Activity Extravaganza!’
An Hour of Games and Activities with the Barretstown Gang
Friday 23rd October: #WearAHatDay
#WearAHatDay
Win a Michelle Treacy Hat for best selfie competition
Please contact info@braintumourireland.com to sign up for your chosen events.
As part of the awareness week, we’re also holding the annual #WearAHatDay, taking place on Friday, 23rd October, – we’re asking you to get involved!
All you have to do is put on your favourite hat on Friday, 23rd October, take a selfie and post on Facebook, Twitter or Instagram and use #WearAHatDay, then text BTI to 50300 to donate €4 to Brain Tumour Ireland.
From fedoras to fascinators- anything goes!
There’s also a prize for the ’best selfie’ – a generously donated bespoke hat from milliner Michelle Treacy! Check out her talents at https://m.facebook.com/michelletreacymillinery/
Our annual Brain Tumour Ireland run is going virtual for 2020!
To take part in this event, you can walk, jog or run either 5km or 10k, anytime between Sunday November 1st & Sunday November 8th.
Entries cost €20 and this year we have a beautiful finisher’s medal for you as a souvenir of the event. You can enter the event here.
Our event forms part of “Walk Around the World for Brain Tumours”, a project co-ordinated by the International Brain Tumour Alliance (IBTA). https://theibta.org/awareness-raising/#one
We will donate the mileage covered to the IBTA’s “World Walk” target of circling the earth to raise awareness of brain tumours globally.
To help contribute to the mileage and donate to the work of Brain Tumour Ireland, we hope you will join us for this year’s virtual event!
The Ronnie Fehily Foundation CHY20506. Founded in 2012 by a small group of people caring for a family member who was sadly lost to a Brain Tumour.
