Every year in Ireland, an average of 45 children and teenagers, are diagnosed with a tumour of the brain or spinal cord.
Palliative care for children represents a special, albeit closely related field to adult palliative care.
When a family goes through a diagnosis like a paediatric brain tumour, it can be very tough on siblings. Young siblings may struggle to understand what is happening and this may be exacerbated by a change in routine with hospital visits, that can affect the whole family.
Young children and teenagers can feel neglected as the family focuses on the well-being of the child with the diagnosis. It’s ok for brothers and sisters to feel angry, hurt, and even jealous sometimes. It’s perfectly normal. It’s important to talk honestly and openly (in an age-appropriate way) with the siblings of children with a brain tumour. They will need support too. And parents should also be careful not to feel guilty when trying their best to spread their energy and resources among all members of the family who need them.
CanTeen Ireland is a nationwide support group for young people who have or had cancer, and also for their siblings and friends.
Barretstown offers free, specially designed camps and programmes for children and their families living with a serious illness – supported behind the scenes by 24-hour on-site medical and nursing care.
If you wish to connect with other parents who understand what you are going through, you have come to the right place.
We would also like to hear from you about how we can provide longer-term support for parents and create a supportive community.
Please contact us and let us know, so we can best respond to your needs.