Brain Tumour Ireland Events

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Brain Tumour Ireland contributes to Study Day for Oncology Nurses

Brain Tumour Ireland was delighted to take part in today’s Study Day for Oncology Nurses in Beaumont’s Centre of Education.

Patient representative James Murphy, and BTI National Co-ordinator, Fiona Keegan speaking to oncology nurses at their Study Day.

We attended this event last year to give guidance to Oncology Nurses in relation to the experiences of brain tumours patients, so it was great to be invited back again this year.

We spoke with the nurses about the specific needs of brain tumour patients and their families, from diagnosis, through treatment and on to aftercare.

James Murphy, a brain tumour patient and supporter of our charity gave a first-hand account of what it is like to be a brain tumour patient receiving treatment in hospital here in Ireland.

It is extremely positive that Beaumont Hospital is bringing the patient voice into their classroom in this way and we are very grateful to Beaumont’s Centre of Education for this opportunity. Charities and patient representative groups can play a role in the education, training and development of medical professionals, and this was a great opportunity for us to advocate on behalf of brain tumour patients.

It was lovely to meet such a great group of nurses who are seeking to achieve the highest standards in the care they give to brain tumour patients.

 

 

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Upcoming lecture on brain tumours in the Royal College of Surgeons in Ireland

Brain Tumour Ireland and the Royal College of Surgeons in Ireland (RCSI) are delighted to present a two part lecture on brain tumours on Friday, 9th March.

The event takes place at 6.30pm in RCSI Dublin, in the 1st Floor Lecture Theatre, Mercer Building,
(Entry to the Mercer Building is through the black gates on Noel Purcell Walk, Dublin 2).

Mr. Stephen MacNally, Consultant Neurosurgeon & National Clinical Lead for Neuro Oncology, Beaumont Hospital, will give a talk entitled “Update on the Clinical Management of High Grade Gliomas”.

This will be followed by a talk entitled “Searching for New Ways to Tackle Glioblastoma: Fighting the Good Fight”, by Prof. Annette Byrne, Associate Professor, RCSI Dept of Physiology and Medical Physics & RCSI Centre for Systems Medicine.

The event promises to give an interesting insight into current clinical practise and ongoing research in the area of brain tumours.

While the event is free, pre-registration is necessary. You can book your place at: https://www.eventbrite.ie/e/brain-tumour-ireland-talk-tickets-43339996095

 

 

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New brain tumour support group for the north west

Brain Tumour Ireland and Cancer Care West are pleased to announce a new brain tumour support group in the north west region, which will meet in Donegal.

The group aims to provide support for people diagnosed with a brain tumour and their families in Donegal and also the surrounding region.

The group will meet every second month initially, in the Cancer Care West Support Centre, Second Floor, Pearse Rd, Letterkenny, Co. Donegal.

Please email info@braintumourireland.com or call Cancer Care West on 074 96 01901 for further information.

 

    

 

 

 

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BRAIN TUMOUR IRELAND REMEMBRANCE SERVICE

Brain Tumour Ireland is hosting a Remembrance Service on Saturday, 25th of November in Dublin. This event is open to people who have lost a loved one due to a brain tumour.

It is a non-denominational service taking place in the peaceful surroundings of the Wisdom Centre Dublin.

Please click here for a map of the venue. It can be accessed from Ormond Street, which is just off Cork Street, in Dublin 8.

We are fortunate to have  Padraic Cawley to facilitate the service. You can learn more about Padraic’s work here.

All participants will have an opportunity, should they wish, to share memories, reflections, poems and music together. We also welcome those who wish to attend and simply listen, it is not compulsory to participate!

Singer and harpist Deirdre Seaver will provide music for the event. Those who attended last year will remember the beautiful music performed by Deirdre on the day. You can learn more about her work here.

Time: 10.30am with service starting at 11.00am.

Location: The Wisdom Centre, Dublin 8. Please click here for a map showing the location of the venue.

We would love you to join us for tea/coffee and a chat after the service.

To reserve your place please contact sandra@braintumourireland.com.

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Brain Tumour Ireland Family Day at Barretstown!

 

Brain Tumour Ireland is holding a Family Day at Barretstown Camp, Co. Kildare!

It takes place on Sunday, 10th December, 2017.

This is a free event for children who have been affected by a brain tumour, as well as their siblings, parents and grandparents.

We hope you will join us for a day of carefree fun for all.

To register your family, please contact fiona@braintumourireland.com

In addition to all the usual fun Barretstown activities, facepainting will be available for the children on arrival.

A number of very kind beauticians have also volunteered their services for some pampering for parents!

AND we have even invited Santa along to meet the children! Thanks to the fantastic “elves” in Twitter Dublin who’ve been helping Santa get the gifts ready as part of their recent Twitter for Good Day.

The schedule for the day is available here.

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Brain Tumour Ireland 10K & 5K fundraiser 2017

The annual Brain Tumour Ireland run / walk event to fundraise for our work in supporting brain tumour patients and their families, takes place on Sunday, 5th November in Corkagh Park Dublin.

There are 10K and 5K timed runs and also a 5K family fun run/walk.

This event forms part of  “Walk Around the World for Brain Tumours”, a project coordinated by the International Brain Tumour Alliance (IBTA). We will donate the mileage covered in Corkagh Park to the IBTA’s “World Walk” target of circling the earth to raise awareness of brain tumours globally.

To help contribute to the mileage and donate to the work of Brain Tumour Ireland, come join us in Corkagh Park! See further information below:

 

When: Sunday, 5th November 2017

Where: Corkagh Park, Clondalkin, Dublin 22

 Start time: 11am

 Sign in and t-shirt pick up: 9.30 – 10.15am

 Meet: Car park at St. John’s Grove entrance

(NB this is the main entrance to Corkagh Park off Fonthill Road South NOT the N7)

You can register here: https://www.popupraces.ie/events/brain-tumour-ireland-10k5k-run

Online registration is preferred but on the day registration is available between 9.30-10.15am

 

Prices:

  • 10k timed run €20 (Free technical race t-shirt & timing chip)
  • 5k timed run €15 (Free technical race t-shirt & timing chip)
  • 5k untimed run & walk €10 (Free t-shirt)

 

Prizes for 1st & 2nd Male and Female

 

Facilities:

  • Bag/Key drop off point
  • Toilets
  • Parking
  • Refreshments at finish line

 

 www.braintumourireland.com

CHY. NO. 20506

 

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Twitter Wear a Hat Day for brain tumours

As part of its yearlong partnership with Brain Tumour Ireland, Twitter Dublin is running a fundraising initiative entitled “Wear a Hat Day” on Friday, 12th of May.

Twitter employees are encouraged to wear a hat to the office on Friday 12th May and promote the initiative with selfies and videos on Twitter using the #WearAHatDay hashtag.

At the end of the day, a fun prize will be given to the Twitter employee with the best hat.

People can donate through the special fundraising page: https://give.everydayhero.com/ie/wear-a-hat-day-2017 or donate €4 by texting BTI to 50300 .  100% of your donation goes to Brain Tumour Ireland across most network operators. Some operators apply VAT which means a minimum of €3.25 will go to Brain Tumour Ireland. Service Provider LIKECHARITY. Helpline: 0766805278

By promoting the initiative through Twitter, it’s hoped that the general public will get involved and that they’ll give generously as well.

Lina Stein, Mayo based, Milliner /Tutor and also recent brain tumour survivor, has kindly donated one of her beautiful hats as a prize for the creator of the best hat in the Twitter Dublin office on Friday.
Check out Lina’s website here: http://www.linasteinmillinery.com/

 

The Twitter / Brain Tumour Ireland partnership came about through James Murphy, a young man from Cork who was diagnosed with a brain tumour last year. After undergoing treatment James is now back at work at his job in procurement for Twitter Dublin.

James received huge support from his employer and colleagues at Twitter Dublin throughout this time and, as part of this, they decided to nominate Brain Tumour Ireland as their charity of the year for 2017.

Speaking in advance of the Twitter Wear a Hat Day, Chair of Brain Tumour Ireland Natasha Smith said, “We are extremely grateful to James Murphy and everyone at Twitter Dublin for choosing us as their charity of the year.

“We first met James last November at our annual fundraising run in Dublin.  Despite recovering from a brain tumour and recent treatment at the time, James and his great group of friends ran 10km in aid of Brain Tumour Ireland!

“James is a really inspirational guy and proof that you can live a good life after a brain tumour diagnosis. We are delighted he is back at work now in Twitter and doing well.

“We hope Twitter’s Wear a Hat Day will help to raise awareness of brain tumours in Ireland and we encourage others to get involved and wear a hat for brain tumours on the 12th May.”

Funds raised will be used to support brain tumour patients in Ireland and to help fund brain tumour research.

Natasha explained “Through our partnership with the Royal College of Surgeons in Ireland, we are helping to fund a badly needed brain tumour biobank for researchers to store and analyse sample tissue.

“Brain Tumour Ireland is also holding a Wellness Day in Cork on Saturday 20th May. This is one of a series of such events we have held to support brain tumour patients and their families.”

 

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Wellness Day – Cork

Brain Tumour Ireland is holding a Wellness Day on Saturday, 20th May, in the Ennismore Retreat Centre, Cork.

This free event is open to brain tumour patients as well as family members and carers. In addition to benefiting from the scheduled sessions, previous participants have reported the positives of meeting with other brain tumour patients and sharing experiences and advice.

The event will start at 10am and will finish at approximately 3pm.

Lunch will be provided.

You can register your free place by emailing sandra@braintumourireland.com
(Places are limited).

Details

We have some wonderful sessions planned for the day:
(1)  Mindfulness,
(2) The Herb and Vegetable Garden – Growing for nutritional cooking,
(3) Music Therapy.

The full outline of the day is available here.

 

Facilitators:

Mindfulness

Nicola Morey – B.Comm, MBS (HR), Qualified Mindfulness Teacher (MBSR).

www.mindfulnessyoughal.com

 

Growing for nutritional cooking

Michael Kelly –  writer, and founder of GIY and GROW HQ, Ashoka Fellow, Member TASTE Council of Ireland & Irish Food Writers Guild.

https://giy.ie/archive/giy-profile-of-michael-kelly.html

 

Music Therapy

Jess O’Donoghue – MA Music Therapy UL, BSc Speech & Lang Therapy NUIG.

http://odonoghuejessica.wixsite.com/website

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Join team Brain Tumour Ireland for the Women’s Mini Marathon!

Join the Brain Tumour Ireland team for the 2017 VHI Women’s Mini Marathon and help fund brain tumour research and support brain tumour patients here in Ireland.

The entry period has been extended to Friday 12th May.

You can enter directly with the event organisers here: http://bit.ly/2qWKGqu

Contact sandra@braintumourireland.com to join the Brain Tumour Ireland team for the day! We will give you the meet up details as well as your free t-shirt. (This can be sent to you in advance if you are not free to meet on race day.)

Check out the helpful training plans and nutrition advice here on the Mini Marathon page: https://www.vhiwomensminimarathon.ie/vhi-womens-mini-marathon-training.19.html

 

 

 

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Brain Tumour Ireland meets with nurses in Beaumont Hospital’s Centre of Education

Today we spent time with the people from Beaumont Hospital’s Centre of Education, talking to nurses who are taking a neuro-oncology course.

Meeting with nurses in Beaumont’s Centre of Education.

We spoke with them about brain tumours and the specific needs of brain tumour patients and their families.

Natasha Smith (Chair of Brain Tumour Ireland) explained why the charity was formed. She outlined both the work that has been done to date, and our plans for the future.

James Murphy, a brain tumour patient and great supporter of our charity, spoke about his hospital experiences, both negative and positive. He detailed his patient experience from the time of his diagnosis right through to his surgery and treatment.

We are very grateful to Beaumont’s Centre of Education for the opportunity to advocate on behalf of the brain tumour community with this great group of nurses who are seeking to achieve the highest standards in the care they give to brain tumour patients.

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