Brain Tumour Ireland News

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Caring for Carers – Coffee Morning and Information Session

Coffee Morning and Information Session for Carers

To mark National Carers Week (10th – 16th June 2019), Brain Tumour Ireland is hosting a coffee morning and information session for the family, friends and carers of those diagnosed with a brain tumour.

Date: Saturday 8th June 2019

Venue:  Business Centre, The Westbury Hotel, Dublin 2.

Time: 11am to 1pm

Our guest speaker Marian Mahon from Family Carers Ireland will be there to answer any questions you may have regarding your entitlements when caring for a loved one.

 

We would love you to join us. This event is free of charge.

If you wish to attend, please RSVP to sandra@braintumourireland.com

(Places are limited and will be allocated on a first come first served basis)

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Wellness Day – Cork

 

Brain Tumour Ireland is holding a Wellness Day on Sunday, 26th May in the Ennismore Retreat Centre, Cork.

This free event is open to brain tumour patients as well as family members and carers. In addition to benefiting from the scheduled sessions, previous participants have reported the positives of meeting with other brain tumour patients and sharing experiences and advice.

The event will start at 10am and will finish at approximately 3pm.

Lunch will be provided.

You can register your free place by emailing fiona@braintumourireland.com
(Places are limited).

Details

We have some wonderful sessions planned for the day:
(1)  Mindfulness,
(2) Nutrition,
(3) Let’s dance!

 

A full outline of the day is available here.

 

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Living Well With a Brain Tumour – a free event

Join us along with the Irish Cancer Society and the Neurosciences Department of Beaumont Hospital, on Thursday 16th of May (9am – 3pm).

This is a free information and support event designed to help meet the challenges faced by those affected by a brain tumour and their families.

Presentations will be given on topics including:

  • What’s new in brain tumour management;
  • How to manage seizures;
  • Well-being;
  • Speaking to children about a brain tumour;
  • Managing physical and cognitive challenges;

Lunch, refreshments and parking will be provided free on the day.

To register for free, visit https://www.eventbrite.ie/e/living-well-with-a-brain-tumour-tickets-58734220635

Attendees must be 18 years of age or above.

For more information please call 01 852 8379/8455 or send an email to eloisecowie@beaumont.ie or eithnedunne@beaumont.ie.

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JOIN TEAM BRAIN TUMOUR IRELAND FOR THE 2019 VHI WOMEN’S MINI MARATHON

We would be delighted to include you in the Brain Tumour Ireland team for this year’s event, which takes place on SUNDAY 2nd June at 2pm.

We will be in D2 Bar , Harcourt St on the day to mind your bags and provide some well deserved post-race refreshments and nibbles!

By joining the Brain Tumour Ireland team you will be helping to fund brain tumour research as well as our work in supporting brain tumour patients and their families.

It’s easy to sign up! Follow the simple three step process here: https://braintumourireland.com/vhi-womens-mini-marathon/

So come on everybody let’s get those runners on, and help make this an even bigger event than last year. We do hope you will join us and we look forward to seeing you on the 2nd of June!

 

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North West Support Group – upcoming meeting

The next meeting of our Donegal Support Group in conjunction with Cancer Care West takes place on Wednesday 6th of February 2019 at 6.30pm.

The location is the Cancer Care West Centre, 2nd Floor, Pearse Road, Letterkenny.

The Irish Brain Tumour Support Group also run other support meetings around the country. You can find out more about their meetings here: http://www.braintumoursupport.ie/

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Brain Tumour Biobank

Brain Tumour Ireland is proud to part fund Ireland’s first dedicated brain tumour biobank in partnership with the Royal College of Surgeons in Ireland and Beaumont Hospital

A biobank is a large collection of biological, medical data and tissue samples, collected for research and diagnostic purposes. A patient who is having brain surgery as part of their clinical treatment will have the tumour removed, examined and diagnosed. After this the excess brain tumour tissue will be stored in the biobank.

Based in Beaumont Hospital, the brain tumour biobank is a repository for brain tumour samples which will enable researchers use samples for future clinical studies, to identify and diagnose tumours in other patients and help develop cancer treatments. All samples included in the biobank are anonymised and patients consent is sought in advance of treatment.

This is the first biobank of its type in Ireland and one of only a small handful that exist in Europe.

In an exciting development the biobank is now supporting a major new study on glioblastoma (GBM). Professor Annette Byrne from RCSI is leading an international team of scientists on a major research study that aims to train the next generation of brain cancer researchers.

The project (“GLIOTRAIN”) has received funding of almost €3.9 million from the European Commission’s Horizon 2020 Research and Innovation Framework Programme.

Brain Tumour Ireland is delighted that the brain tumour biobank which we are part funding, will support this study. It is a really important development in brain tumour research here in Ireland and for the future development of novel therapeutics. We look forward to continued partnership with RCSI and Beaumont Hospital on this fantastic initiative.

The existence of the biobank is of course thanks to the many people who donate to Brain Tumour Ireland and who organise fundraising events for us.

Together we are working to improve outcomes for brain tumour patients and we thank you for your support.

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Brain Tumour Ireland Family Day at Barretstown Camp!

Brain Tumour Ireland is holding a Family Day at Barretstown Camp, Co. Kildare!

It takes place on Sunday, 9th December, 2018 from 10.30am to 4.30pm.

This is a free event for children who have been affected by a brain tumour, as well as their siblings, parents and grandparents.

We hope you will join us for a day of carefree fun for all. Activities include Christmas decoration making and general arts and crafts; baking; archery; the climbing wall; the zipline; crazy golf; lego and lots of other fun games!

Pre- registration is essential. For any queries please contact info@braintumourireland.com

 

 

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Remembrance Service 2018

The annual Brain Tumour Ireland remembrance service will take place on Sunday 18th November @ 2.30pm in the Wisdom Centre Dublin.

This event is open to people who have lost a loved one due to a brain tumour.

It is a non-denominational service taking place in the peaceful surroundings of the Wisdom Centre Dublin.

Please click here for a map of the venue. It can be accessed from Ormond Street, which is just off Cork Street, in Dublin 8.

All participants will have an opportunity, should they wish, to share memories, reflections, poems and music together. We also welcome those who wish to attend and simply listen, it is not compulsory to participate!

 

Details:

Time: 2.30pm.

Location: The Wisdom Centre, Dublin 8. Please click here for a map showing the location of the venue.

Facilitators: 

We are fortunate to have  Padraic Cawley to facilitate the service. You can learn more about Padraic’s work here.

Singer and harpist Deirdre Seaver will provide music for the event. Those who attended last year will remember the beautiful music performed by Deirdre on the day. You can learn more about her work here.

We would love you to join us for tea/coffee and a chat after the service.

If you wish to attend please rsvp to Fiona by emailing info@braintumourireland.com

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Philip Treacy pin designed exclusively for Brain Tumour Ireland

The Irish milliner Philip Treacy has designed a beautiful pin exclusively for Brain Tumour Ireland to mark Wear A Hat Day.

We are very proud of this collaboration and all monies raised from the sale of this pin will go into providing services, raising awareness and to fund research.

You can purchase the pin, priced at €10 here.

 

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#WearAHatDay 2018 – Get Involved!

On Friday, 26th October, we’re asking you to support #WearAHatDay and help Brain Tumour Ireland to raise much-needed funds to deliver patient support and information services, raise awareness of brain tumours and their symptoms, and fund research.

Over 400 brain tumours are diagnosed in Ireland each year; it’s a diagnosis that can be truly overwhelming for patients and their families. Every #WearAHatDay donation made will contribute to our work on behalf of patients and their families.

It’s easy to take part and will certainly brighten up your bank holiday Friday! All you have to do is:

  1. Put on a hat – whether it’s your most extravagant fascinator, your own creation, or your favourite beanie.
  2. Take a photo of you wearing the hat.
  3. Share the picture on Facebook, Twitter or Instagram using the hashtag #WearAHatDay.
  4. Text BTI to 50300 to donate €4. (100% of your donation goes to Brain Tumour Ireland across most network operators. Some operators apply VAT which means a minimum of €3.25 will go to Brain Tumour Ireland. Service Provider LIKECHARITY. Helpline: 0766805278)
  5. Ask your friends, family and colleagues to do the same.

#WearAHatDay takes places as part of International Brain Tumour Awareness Week (20 – 27 October).

You can find out more about the supports Brain Tumour Ireland provide here, and more information about Brain Tumour Ireland here.

Don’t forget to make sure you’re following us on Facebook, Twitter, and Instagram and use the hashtag #WearAHatDay.

 

Pictured / News 12052017.
Twitter nominated Brain Tumour Ireland as their charity of the year for 2017 after a colleague was diagnosed with a brain tumour in 2016. As part of their fundraising efforts the Twitter Dublin staff organised #WearAHatDay. The idea is for employees to wear hats to work to raise awareness of brain tumours and donate to Brain Tumour Ireland.
Pictured from left is x
For more information please see www.braintumourireland.com. To donate 4euro to the cause on Wear a Hat Day text BTI to 50300.
Photo Chris Bellew / Fennells