Brain Tumour Ireland News

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Coronavirus (COVID-2019)

Do you need information or support? Maybe even just a chat?

We are here.

We know that this is a very challenging time for people living with brain tumours, particularly anyone receiving a new diagnosis. We want to continue to support you, your families and/or carers.

What is the most difficult aspect of COVID-19 for you at the moment? Is there any way that burden can be eased for you?

Contact us at info@braintumourireland.com or by calling 085 7219000. The phone is manned Monday – Thursday but if you do not get us immediately you can leave a message and we will get back to you.

Together we will get through this challenging time.

 

See here for our dedicated COVID-19 advice page.

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Important notice for the brain tumour community in Ireland

An important public notice was placed in newspapers by Beaumont Hospital this weekend.

If you or an adult family member were treated for a brain tumour at Beaumont Hospital between 29 November 1987 and 7 August 2018 you should consult this website here.

The website describes a study being conducted by Beaumont Hospital and it explains how you or your family member can be excluded from the research if you so choose.

All queries in relation to the study can be directed to btis@beaumont.ie or by calling 017977726.

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VHI WOMEN’S MINI MARATHON 2020 – JOIN TEAM BTI!

UPDATE: Unfortunately due to the evolving situation with the Coronavirus (COVID-19) the organisers of the VHI Women’s Mini Marathon have had to postpone this year’s race. We commend the organisers in this decision.

We hope you will be able to join team BTI for this great event whenever it is rearranged! 

 

Join team BTI for the 2020 VHI Women’s Mini Marathon!

This year’s event takes place on SUNDAY 31st May at 2pm.

We will be in D2 Bar, Harcourt St on the day to mind your bags and provide some well-deserved post-race refreshments and nibbles!

By joining the Brain Tumour Ireland team you will be helping to fund brain tumour research as well as our work in supporting brain tumour patients and their families.

It’s easy to sign up! Follow the simple three step process here: https://braintumourireland.com/vhi-womens-mini-marathon/

Help us to make this the biggest BTI team yet for the Women’s Mini Marathon!

 

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Brain Tumour Ireland Family Day at Barretstown Camp!

Brain Tumour Ireland is holding a Family Day at Barretstown Camp, Co. Kildare!

It takes place on Sunday, 1st December, 2019, with registration at 10am.

This is a free event for children who have been affected by a brain tumour, as well as their siblings, parents and grandparents.

We hope you will join us for a day of carefree fun for all. Activities include Christmas decoration making and general arts and crafts; baking; archery; the climbing wall; the zipline; crazy golf; lego and lots of other fun games!

Pre- registration is essential. Please contact fiona@braintumourireland.com to book a place for your family.

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Remembrance Service 2019

The annual Brain Tumour Ireland remembrance service will take place on Sunday 24th November @ 3pm in the Wisdom Centre Dublin.

This event is open to people who have lost a loved one due to a brain tumour.

It is a non-denominational service taking place in the peaceful surroundings of the Wisdom Centre Dublin.

Please click here for a map of the venue. It can be accessed from Ormond Street, which is just off Cork Street, in Dublin 8.

All participants will have an opportunity, should they wish, to share memories, reflections, poems and music together. We also welcome those who wish to attend and simply listen, it is not compulsory to participate!

Facilitators: 

We are fortunate to have  Padraic Cawley to facilitate the service. You can learn more about Padraic’s work here.

Singer and harpist Deirdre Seaver will provide music for the event. Those who attended last year will remember the beautiful music performed by Deirdre on the day. You can learn more about her work here.

We would love you to join us for tea/coffee and a chat after the service.

 

RSVP: If you wish to attend please rsvp to Fiona by emailing info@braintumourireland.com

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Special Exhibition for Brain Tumour Awareness Week

Deb Fanning Millinery and Emma Synnott Photography present ‘TIL DEATH DO US PART.

 

Register on Eventbrite: https://www.eventbrite.ie/e/til-death-do-us-part-tickets-68249312531?aff=ebdssbdestsearch

For one night only, Deb Fanning and Emma Synnott will present their very first joint exhibition ‘Til Death do us Part, taking place at Crow Street, Temple Bar on November 1st 2019, from 6pm.

Deb Fanning is an award nominated Irish Milliner who just recently had pieces on sale in Brown Thomas in the lead up to the Galway Races Summer Festival. Emma Synnott is a well established Irish Photographer with a huge interest in exploring editorial fashion photography.

Over the last year we have been working towards this very personal exhibition to showcase a collective piece of work. Having both lost our Dad’s over the last 18 months, we became a huge support system for each other through the unique journey of meandering grief. We decided to work on a project together that would help us to express our grief, and using our creative abilities, focus on opening and normalising a healthy conversation around grief.

The exhibition will display a brand new 12 piece collection from Deb under the theme ‘Til Death do us Part’ – including 6 white and 6 black hats and headpieces.

Emma will display photographs taken of the collection on the night, shot in editorial style, a new style for Emma to choose, alongside the actual pieces made by Deb for this joint exhibition.

November 1st is ‘Day of the Dead’ – a holiday which involves family and friends gathering to remember friends and family members who have died, and to help support their spiritual journey. In Mexican culture, death is viewed as a natural part of the human cycle. Mexicans view it not as a day of sadness but as a day of celebration. We want to encourage continuing this conversation as something that is healthy and part of life.

On the Night:

This exhibition is FREE OF CHARGE, however, donations would be greatly appreciated to support both the Brain Tumour Ireland and Irish Heart Foundation charities.

The venue has a full bar and we will provide snacks and nibbles for attendees on the night.

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Brain Tumour Research – a two-part public lecture on Wed 30th Oct

As part of International Brain Tumour Awareness Week, Brain Tumour Ireland, the Royal College of Surgeons in Ireland and Trinity College Dublin together will host a two part lecture on brain tumour research.

The event takes place on Wednesday 30th Oct @ 6.30pm in Trinity Biomedical Sciences Institute.

Details of the two part lecture are as follows:

    1. “Finding New Ways in the Lab to Tackle Glioblastoma” by Dr. Kate Connor PhD, RCSI Dept of Physiology and Medical Physics.
      • Followed by two GLIOTRAIN Project PhD Students with updates on their research in GBM.
    2. “Brain Tumours and Epilepsy: Vital Links Provide Valuable Clues?” by Prof. Mark Cunningham PhD FTCD, Discipline of Physiology, School of Medicine, TCD.

Further information and eventbrite registration at RCSI Talk Flyer_30.10.19

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Brain Tumour Ireland Run 2019

The annual Brain Tumour Ireland run / walk event to fundraise for our work in supporting brain tumour patients and their families, takes place on Sunday, 3rd November, in Corkagh Park, Dublin.

There is a 10k/5k timed race for individuals, and for those who don’t wish to be timed there’s an untimed 5k family fun run/walk option (buggies allowed).

This event forms part of  “Walk Around the World for Brain Tumours”, a project co-ordinated by the International Brain Tumour Alliance (IBTA). We will donate the mileage covered in Corkagh Park to the IBTA’s “World Walk” target of circling the earth to raise awareness of brain tumours globally.

 

To help contribute to the mileage and donate to the work of Brain Tumour Ireland, come join us in Corkagh Park!

 

Group discount of 20% now available for groups booking 10+  participants in one race (i.e. all 10+ must be in 5k race or all 10+ must be in 10k race)

 

Prizes

1st & 2nd Male & Female for each distance

 

Facilities:

  • Bag/Key drop off point
  • Toilets
  • Parking
  • Refreshments at finish line

 

When: Sunday, 3rd November 2019

Where: Corkagh Park, Clondalkin, Dublin 22

 Start time: 11am

 Sign in and t-shirt pick up: 9.30 – 10.15am

 Meet: Car park at St. John’s Grove entrance

(NB this is the main entrance to Corkagh Park off Fonthill Road South NOT the N7)

 

ONLINE REGISTRATION AVAILABLE HERE

If needed, supplementary registration is available on the day between 9.30-10.15am.

 

 www.braintumourireland.com

Registered Charity Number: 20102128 | Revenue Number: 20506

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Brain Tumour Awareness Week

The 2019 Brain Tumour Awareness Week takes place from the 26th October to the 2nd November. The week is marked by the International Brain Tumour Alliance, of which we are a proud member.

We will be holding our Wear a Hat Day on Friday, 25th October.and our annual run in Dublin on Sunday, 3rd November, to bookend the week.

There will be a number of other events and initiatives throughout the week itself. Further information can be found below.

 

Wear a Hat Day – Fri 25th Oct 2019

Much like last year we will be encouraging people to wear a hat to work, school or college or in their community on Friday, 25th of October. Share a selfie on your social media to help raise awareness of brain tumours. You can also text BTI to 50300 to donate €4 to Brain Tumour Ireland to help support brain tumour patients and to fund research. Please use #WearAHatDay.

Milliner Debra Fanning has kindly donated a hat for us to give as a prize for the best #WearAHatDay photo.

We are encouraging Transition Year school students to get involved in Wear a Hat Day this year. Please email info@braintumourireland.com if you would like more information on how to go about this in your school.

 

GP awareness of brain tumours – throughout the week

Throughout brain tumour awareness week, GPs all across Ireland will receive an information leaflet from Brain Tumour Ireland highlighting the incidence of brain tumours and the importance of looking out for brain tumour symptoms.

 

Two part public lecture on brain tumours – Wed, 30th Oct

Brain Tumour Ireland, the Royal College of Surgeons in Ireland and Trinity College Dublin together will host a two part lecture on brain tumour research.

The event takes place on Wednesday 30th Oct @ 6.30pm in Trinity Biomedical Sciences Institute.

Details of the two part lecture are as follows:

    1. “Finding New Ways in the Lab to Tackle Glioblastoma” by Dr. Kate Connor PhD, RCSI Dept of Physiology and Medical Physics.
      • Followed by two GLIOTRAIN Project PhD Students with updates on their research in GBM.
    2. “Brain Tumours and Epilepsy: Vital Links Provide Valuable Clues?” by Prof. Mark Cunningham PhD FTCD, Discipline of Physiology, School of Medicine, TCD.

Further information and eventbrite registration is at RCSI Talk Flyer_30.10.19

 

Exhibition- ‘Until Death Do Us Part’

Milner Debra Fanning and photographer Emma Synnott are holding a joint exhibition on Friday 1st November in Crow Street Restaurant, Temple Bar from 6pm. Emma will be raising funds for BTI and Debra will be raising funds for Irish Heart Foundation. Please see attached link for information on the event and to book tickets https://www.eventbrite.ie/e/til-death-do-us-part-tickets-68249312531.

 

Brain Tumour Ireland annual run – Sun 3rd Nov

Each year we hold a run in Corkagh Park Dublin to raise awareness of brain tumours as part of the IBTA’s ‘Walk Around the World for Brain Tumours’ project. This run also serves as our main fundraiser for the year and is crucial to our work in supporting brain tumour patients and their families. Further details on registration to follow.

 

We hope you will get involved with this year’s Brain Tumour Awareness Week. Stay tuned to our social media for more information!