Brain Tumour Ireland News

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Brain Tumour Ireland contributes to Study Day for Oncology Nurses

Brain Tumour Ireland was delighted to take part in today’s Study Day for Oncology Nurses in Beaumont’s Centre of Education.

Patient representative James Murphy, and BTI National Co-ordinator, Fiona Keegan speaking to oncology nurses at their Study Day.

We attended this event last year to give guidance to Oncology Nurses in relation to the experiences of brain tumours patients, so it was great to be invited back again this year.

We spoke with the nurses about the specific needs of brain tumour patients and their families, from diagnosis, through treatment and on to aftercare.

James Murphy, a brain tumour patient and supporter of our charity gave a first-hand account of what it is like to be a brain tumour patient receiving treatment in hospital here in Ireland.

It is extremely positive that Beaumont Hospital is bringing the patient voice into their classroom in this way and we are very grateful to Beaumont’s Centre of Education for this opportunity. Charities and patient representative groups can play a role in the education, training and development of medical professionals, and this was a great opportunity for us to advocate on behalf of brain tumour patients.

It was lovely to meet such a great group of nurses who are seeking to achieve the highest standards in the care they give to brain tumour patients.

 

 

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Upcoming lecture on brain tumours in the Royal College of Surgeons in Ireland

Brain Tumour Ireland and the Royal College of Surgeons in Ireland (RCSI) are delighted to present a two part lecture on brain tumours on Friday, 9th March.

The event takes place at 6.30pm in RCSI Dublin, in the 1st Floor Lecture Theatre, Mercer Building,
(Entry to the Mercer Building is through the black gates on Noel Purcell Walk, Dublin 2).

Mr. Stephen MacNally, Consultant Neurosurgeon & National Clinical Lead for Neuro Oncology, Beaumont Hospital, will give a talk entitled “Update on the Clinical Management of High Grade Gliomas”.

This will be followed by a talk entitled “Searching for New Ways to Tackle Glioblastoma: Fighting the Good Fight”, by Prof. Annette Byrne, Associate Professor, RCSI Dept of Physiology and Medical Physics & RCSI Centre for Systems Medicine.

The event promises to give an interesting insight into current clinical practise and ongoing research in the area of brain tumours.

While the event is free, pre-registration is necessary. You can book your place at: https://www.eventbrite.ie/e/brain-tumour-ireland-talk-tickets-43339996095

 

 

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New brain tumour support group for the north west

Brain Tumour Ireland and Cancer Care West are pleased to announce a new brain tumour support group in the north west region, which will meet in Donegal.

The group aims to provide support for people diagnosed with a brain tumour and their families in Donegal and also the surrounding region.

The group will meet every second month initially, in the Cancer Care West Support Centre, Second Floor, Pearse Rd, Letterkenny, Co. Donegal.

Please email info@braintumourireland.com or call Cancer Care West on 074 96 01901 for further information.

 

    

 

 

 

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BRAIN TUMOUR IRELAND REMEMBRANCE SERVICE

Brain Tumour Ireland is hosting a Remembrance Service on Saturday, 25th of November in Dublin. This event is open to people who have lost a loved one due to a brain tumour.

It is a non-denominational service taking place in the peaceful surroundings of the Wisdom Centre Dublin.

Please click here for a map of the venue. It can be accessed from Ormond Street, which is just off Cork Street, in Dublin 8.

We are fortunate to have  Padraic Cawley to facilitate the service. You can learn more about Padraic’s work here.

All participants will have an opportunity, should they wish, to share memories, reflections, poems and music together. We also welcome those who wish to attend and simply listen, it is not compulsory to participate!

Singer and harpist Deirdre Seaver will provide music for the event. Those who attended last year will remember the beautiful music performed by Deirdre on the day. You can learn more about her work here.

Time: 10.30am with service starting at 11.00am.

Location: The Wisdom Centre, Dublin 8. Please click here for a map showing the location of the venue.

We would love you to join us for tea/coffee and a chat after the service.

To reserve your place please contact sandra@braintumourireland.com.

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Brain Tumour Ireland Family Day at Barretstown!

 

Brain Tumour Ireland is holding a Family Day at Barretstown Camp, Co. Kildare!

It takes place on Sunday, 10th December, 2017.

This is a free event for children who have been affected by a brain tumour, as well as their siblings, parents and grandparents.

We hope you will join us for a day of carefree fun for all.

To register your family, please contact fiona@braintumourireland.com

In addition to all the usual fun Barretstown activities, facepainting will be available for the children on arrival.

A number of very kind beauticians have also volunteered their services for some pampering for parents!

AND we have even invited Santa along to meet the children! Thanks to the fantastic “elves” in Twitter Dublin who’ve been helping Santa get the gifts ready as part of their recent Twitter for Good Day.

The schedule for the day is available here.

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Major new RCSI study on GBM to be supported by biobank part funded by Brain Tumour Ireland

A major new study on glioblastoma (GBM) will be supported by the brain tumour biobank part funded by Brain Tumour Ireland.

The Royal College of Surgeons in Ireland is leading an international team of scientists on a major research study that aims to train the next generation of brain cancer researchers.

The project (“GLIOTRAIN”) has received funding of almost €3.9 million from the European Commission’s Horizon 2020 Research and Innovation Framework Programme. We congratulate Professor Annette Byrne (RCSI) and her team on winning this significant European Commission Grant.

You can read more about this important RCSI study on their website here.

Brain Tumour Ireland is delighted that the brain tumour biobank which we are part funding, will support this study. You can read more about the biobank here.

The existence of the biobank is of course thanks to the many people who donate to Brain Tumour Ireland and who organise fundraising events for us.

Together we are working to improve outcomes for brain tumour patients and we thank you for your support.

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Brain Tumour Ireland 10K & 5K fundraiser 2017

The annual Brain Tumour Ireland run / walk event to fundraise for our work in supporting brain tumour patients and their families, takes place on Sunday, 5th November in Corkagh Park Dublin.

There are 10K and 5K timed runs and also a 5K family fun run/walk.

This event forms part of  “Walk Around the World for Brain Tumours”, a project coordinated by the International Brain Tumour Alliance (IBTA). We will donate the mileage covered in Corkagh Park to the IBTA’s “World Walk” target of circling the earth to raise awareness of brain tumours globally.

To help contribute to the mileage and donate to the work of Brain Tumour Ireland, come join us in Corkagh Park! See further information below:

 

When: Sunday, 5th November 2017

Where: Corkagh Park, Clondalkin, Dublin 22

 Start time: 11am

 Sign in and t-shirt pick up: 9.30 – 10.15am

 Meet: Car park at St. John’s Grove entrance

(NB this is the main entrance to Corkagh Park off Fonthill Road South NOT the N7)

You can register here: https://www.popupraces.ie/events/brain-tumour-ireland-10k5k-run

Online registration is preferred but on the day registration is available between 9.30-10.15am

 

Prices:

  • 10k timed run €20 (Free technical race t-shirt & timing chip)
  • 5k timed run €15 (Free technical race t-shirt & timing chip)
  • 5k untimed run & walk €10 (Free t-shirt)

 

Prizes for 1st & 2nd Male and Female

 

Facilities:

  • Bag/Key drop off point
  • Toilets
  • Parking
  • Refreshments at finish line

 

 www.braintumourireland.com

CHY. NO. 20506

 

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IBTA e-news

This month’s e-news from the International Brain Tumour Alliance is out now.

You can read it in full here:

http://mailchi.mp/theibta/rculorsyeg-2298909?e=acba922eeb

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We Need Our Heads Examined

There is an urgent need for investment in neuro-rehabilitation services in Ireland.

We are co-signatories to a letter on this topic published in today’s Irish Times by the Neurological Alliance of Ireland (NAI).

The full text of the letter is here:

 

Neuro-rehabilitation – a ‘silent crisis’

Sir, – As the representatives of national charities representing people with neurological conditions, we are writing to express our extreme concern at the lack of action on tackling the “silent crisis” in neuro-rehabilitation in this country.

What we are calling for is a commitment from this Government to multiannual investment across hospital and community to deliver the neuro-rehabilitation services that are taken for granted across the rest of Europe.

Ireland is a European blackspot when it comes to neuro-rehabilitation services at every stage of the pathway from hospital to home.

Many are losing a vital window of recovery as they wait months for a neuro-rehab bed or appropriate services in the community.

The National Neuro-rehabilitation Strategy was published in 2011 with an implementation plan expected within six months.

We are still waiting for that plan over six years later.

Minister for Health Simon Harris committed to publishing the plan by June this year in line with the commitment in the programme for government. We now understand that deadline will not be met and no timeline has been given for when the plan will be delivered.

It is one year since we launched our “We Need Our Heads Examined” campaign for action on neuro-rehabilitation.

Since then, we have had more empty promises, following on from more than a decade of failure by successive ministers to address this health crisis, which is leaving thousands of Irish people each year experiencing the unnecessary burden of disability, unable to leave hospital or living in inappropriate settings and with families struggling to cope. – Yours, etc,

MAGDALEN ROGERS,

Executive Director,

Neurological Alliance

of Ireland;

KIERAN LOUGHRAN,

Chief Executive,

Headway;

THOMAS LILLIS,

Chairwoman,

Huntingtons Disease

Association of Ireland;

PAULA GILMORE,

Chief Executive,

Parkinsons Association

of Ireland;

BARBARA O’CONNELL,

Chief Executive,

Acquired Brain

Injury Ireland;

CHRIS MACEY,

Head of Advocacy,

Irish Heart Foundation;

RICHARD LODGE,

Chief Executive,

Muscular Dystrophy Ireland;

REINHARD SCHALER,

Chief Executive,

An Saol;

TINA LEONARD,

Head of Advocacy

and Public Affairs,

Alzheimer Society

of Ireland;

AVA BATTLES,

Chief Executive,

Multiple Sclerosis

Society of Ireland;

KATHLEEN O’MEARA,

Director

of Communications, Public Affairs and Fundraising

Rehab Group;

NATASHA SMITH,

Chairwoman,

Brain Tumour Ireland;

JAMES McCARTHY,

Chairman,

Spinal Injuries

 

 

https://www.irishtimes.com/opinion/letters/neuro-rehabilitation-a-silent-crisis-1.3139482

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Would you like to help with brain tumour research?

Would you like to assist with brain tumour research?

If your loved one has been diagnosed with a brain tumour please contact PhD student Anna Trejnowska from Queen Margaret University to take part in her research.

For more information please see here:

 

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