Brain Tumour Ireland News

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Brain Tumour Biobank

Brain Tumour Ireland is proud to part fund Ireland’s first dedicated brain tumour biobank in partnership with the Royal College of Surgeons in Ireland and Beaumont Hospital.

A biobank is a large collection of biological, medical data and tissue samples, collected for research and diagnostic purposes. A patient who is having brain surgery as part of their clinical treatment will have the tumour removed, examined and diagnosed. After this the excess brain tumour tissue will be stored in the biobank.

Based in Beaumont Hospital, the brain tumour biobank is a repository for brain tumour samples which will enable researchers use samples for future clinical studies, to identify and diagnose tumours in other patients and help develop cancer treatments. All samples included in the biobank are anonymised and patients consent is sought in advance of treatment.

This is the first biobank of its type in Ireland and one of only a small handful that exist in Europe.

In an exciting development the biobank is now supporting a major new study on glioblastoma (GBM). Professor Annette Byrne from RCSI is leading an international team of scientists on a major research study that aims to train the next generation of brain cancer researchers.

The project (“GLIOTRAIN”) has received funding of almost €3.9 million from the European Commission’s Horizon 2020 Research and Innovation Framework Programme.

Brain Tumour Ireland is delighted that the brain tumour biobank which we are part funding, will support this study. It is a really important development in brain tumour research here in Ireland and for the future development of novel therapeutics. We look forward to continued partnership with RCSI and Beaumont Hospital on this fantastic initiative.

The existence of the biobank is of course thanks to the many people who donate to Brain Tumour Ireland and who organise fundraising events for us.

Together we are working to improve outcomes for brain tumour patients and we thank you for your support.

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Brain Tumour Ireland Family Day at Barretstown Camp!

Brain Tumour Ireland is holding a Family Day at Barretstown Camp, Co. Kildare!

It takes place on Sunday, 9th December, 2018 from 10.30am to 4.30pm.

This is a free event for children who have been affected by a brain tumour, as well as their siblings, parents and grandparents.

We hope you will join us for a day of carefree fun for all. Activities include Christmas decoration making and general arts and crafts; baking; archery; the climbing wall; the zipline; crazy golf; lego and lots of other fun games!

Pre- registration is essential. For any queries please contact info@braintumourireland.com

 

 

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Remembrance Service 2018

The annual Brain Tumour Ireland remembrance service will take place on Sunday 18th November @ 2.30pm in the Wisdom Centre Dublin.

This event is open to people who have lost a loved one due to a brain tumour.

It is a non-denominational service taking place in the peaceful surroundings of the Wisdom Centre Dublin.

Please click here for a map of the venue. It can be accessed from Ormond Street, which is just off Cork Street, in Dublin 8.

All participants will have an opportunity, should they wish, to share memories, reflections, poems and music together. We also welcome those who wish to attend and simply listen, it is not compulsory to participate!

 

Details:

Time: 2.30pm.

Location: The Wisdom Centre, Dublin 8. Please click here for a map showing the location of the venue.

Facilitators: 

We are fortunate to have  Padraic Cawley to facilitate the service. You can learn more about Padraic’s work here.

Singer and harpist Deirdre Seaver will provide music for the event. Those who attended last year will remember the beautiful music performed by Deirdre on the day. You can learn more about her work here.

We would love you to join us for tea/coffee and a chat after the service.

If you wish to attend please rsvp to Fiona by emailing info@braintumourireland.com

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Philip Treacy pin designed exclusively for Brain Tumour Ireland

The Irish milliner Philip Treacy has designed a beautiful pin exclusively for Brain Tumour Ireland to mark Wear A Hat Day.

We are very proud of this collaboration and all monies raised from the sale of this pin will go into providing services, raising awareness and to fund research.

You can purchase the pin, priced at €10 here.

 

Buy Pin Here
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#WearAHatDay 2018 – Get Involved!

On Friday, 26th October, we’re asking you to support #WearAHatDay and help Brain Tumour Ireland to raise much-needed funds to deliver patient support and information services, raise awareness of brain tumours and their symptoms, and fund research.

Over 400 brain tumours are diagnosed in Ireland each year; it’s a diagnosis that can be truly overwhelming for patients and their families. Every #WearAHatDay donation made will contribute to our work on behalf of patients and their families.

It’s easy to take part and will certainly brighten up your bank holiday Friday! All you have to do is:

  1. Put on a hat – whether it’s your most extravagant fascinator, your own creation, or your favourite beanie.
  2. Take a photo of you wearing the hat.
  3. Share the picture on Facebook, Twitter or Instagram using the hashtag #WearAHatDay.
  4. Text BTI to 50300 to donate €4. (100% of your donation goes to Brain Tumour Ireland across most network operators. Some operators apply VAT which means a minimum of €3.25 will go to Brain Tumour Ireland. Service Provider LIKECHARITY. Helpline: 0766805278)
  5. Ask your friends, family and colleagues to do the same.

#WearAHatDay takes places as part of International Brain Tumour Awareness Week (20 – 27 October).

You can find out more about the supports Brain Tumour Ireland provide here, and more information about Brain Tumour Ireland here.

Don’t forget to make sure you’re following us on Facebook, Twitter, and Instagram and use the hashtag #WearAHatDay.

 

Pictured / News 12052017.
Twitter nominated Brain Tumour Ireland as their charity of the year for 2017 after a colleague was diagnosed with a brain tumour in 2016. As part of their fundraising efforts the Twitter Dublin staff organised #WearAHatDay. The idea is for employees to wear hats to work to raise awareness of brain tumours and donate to Brain Tumour Ireland.
Pictured from left is x
For more information please see www.braintumourireland.com. To donate 4euro to the cause on Wear a Hat Day text BTI to 50300.
Photo Chris Bellew / Fennells

 

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Brain Tumour Ireland annual run

**POST EVENT PHOTOS AVAILABLE HERE.
With thanks to photographer Emma Synnott.

 

 

The annual Brain Tumour Ireland run / walk event to fundraise for our work in supporting brain tumour patients and their families, takes place on Sunday, 4th November in Corkagh Park Dublin.

There are 10K and 5K timed runs, a 5K  no pressure fun run/walk and also a kids race.

This year for the first time ever we are also offering you the chance to enter as a team. Get your friends or work colleagues on board!

 

Some of Ireland’s hockey world cup heroes will be on hand at the pre-race warm up and the Sam Maguire will also be waiting for you at the finish line so have your cameras at the ready!

 

 

This event forms part of  “Walk Around the World for Brain Tumours”, a project coordinated by the International Brain Tumour Alliance (IBTA). We will donate the mileage covered in Corkagh Park to the IBTA’s “World Walk” target of circling the earth to raise awareness of brain tumours globally.

To help contribute to the mileage and donate to the work of Brain Tumour Ireland, come join us in Corkagh Park! See further information below:

 

When: Sunday, 4th November 2018

Where: Corkagh Park, Clondalkin, Dublin 22

 Start time: 11am

 Sign in and t-shirt pick up: 9.30 – 10.15am

 Meet: Car park at St. John’s Grove entrance

(NB this is the main entrance to Corkagh Park off Fonthill Road South NOT the N7)

 

ONLINE REGISTRATION AVAILABLE HERE

If needed, supplementary registration is available on the day between 9.30-10.15am.

 

Facilities:

  • Bag/Key drop off point
  • Toilets
  • Parking
  • Refreshments at finish line

 

 www.braintumourireland.com

Registered Charity Number: 20102128 | Revenue Number: 20506

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Donegal Support Group

Our Donegal Support Group in conjunction with Cancer Care West meets every second month, on the second Wednesday of the month.

The venue is the Cancer Care West Centre, 2nd Floor, Pearse Road, Letterkenny.

You can email info@braintumourireland.com for more information or call Cancer Care West on 0749601901.

 

 

 

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Keep in touch!

In the context of the General Data Protection Regulation (GDPR) coming into effect, we recently sent an opt-in email to everyone on our database.

If you wish to continue hearing from Brain Tumour Ireland, please make sure you respond to this email by pressing the opt-in button and confirming your contact details.

Or you can opt-in directly here.

Thank you!

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Wellness Day – Cork

 

Brain Tumour Ireland is holding a Wellness Day on Sunday, 20th May in the Ennismore Retreat Centre, Cork.

This free event is open to brain tumour patients as well as family members and carers. In addition to benefiting from the scheduled sessions, previous participants have reported the positives of meeting with other brain tumour patients and sharing experiences and advice.

The event will start at 10am and will finish at approximately 3pm.

Lunch will be provided.

You can register your free place by emailing fiona@braintumourireland.com
(Places are limited).

Details

We have some wonderful sessions planned for the day:
(1)  Mindfulness,
(2) Nutrition,
(3) Music Therapy.

The full outline of the day is available here.

 

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Join the Brain Tumour Ireland team for the 2018 VHI Women’s Mini Marathon

Entries for the 2018 VHI Women’s Mini Marathon are now open!

We would be delighted to include you in the Brain Tumour Ireland team for this year’s event,  which takes place on SUNDAY 3rd June.

We will be in D2 Bar , Harcourt St on the day to mind your bags and provide some well deserved post-race refreshments and nibbles!

By joining the Brain Tumour Ireland team you will be helping to fund brain tumour research as well as our work in supporting brain tumour patients and their families.

It’s easy to sign up! Follow the simple three step process here: https://braintumourireland.com/vhi-womens-mini-marathon/

So come on everybody let’s get those runners on, and help make this an even bigger event than last year. We do hope you will join us and we look forward to seeing you on the 3rd of June!

 

 

Win a prize!

By joining the Brain Tumour Ireland mini marathon team you could also win a prize!

We are giving away a brand new pair of Asics runners to one lucky winner 

There are 2 steps to be in with a chance to win-
1. Like and share this Facebook post tagging 5 of your Facebook friends https://www.facebook.com/braintumourireland/photos/a.423883491006787.95218.394911267237343/1770910459637410/?type=3&theater
2. Register for the VHI Women’s Mini Marathon and join the Brain Tumour Ireland mini marathon team here https://bit.ly/2GyZ14H

Thanks to all who’ve entered so far. We will announce the winner the week after the mini marathon registration closes.

If you join us in D2 on the day there will also be some spot prizes for people on the Brain Tumour Ireland team!

 

Register to Run for Brain Tumour Ireland

 

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